More Of My Life As I Know It

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Six months from now? My friend Michelle was my EDS role model. She was diagnosed long before me and was full of wisdom and empathy for my current struggles. She gave me the hope I so desperately needed. Use online support groups and social media not just for advice, but for finding friends and building community. Yes, online groups can be an invaluable resource! But they can also be dangerous and soul-crushing. My life is not all about EDS, though it sure felt like that the first 6 to 8 months after diagnosis. My thoughts revolved around it, the constant pain reminded me I have it, and my near-constant presence in these groups only served to reinforce my obsession at times.

When my body started deteriorating and my pain worsened in , I started canceling on people more and more. When my health was at its worst, I rarely made social plans. When I did, I warned them I may have to cancel last minute because my pain was unpredictable. Bonus: It also makes it much clearer who your real friends are.


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But listen: If someone offers to help, believe that their offer is genuine, and accept it if you need it. I injured myself many times last year because I was too embarrassed to ask my husband to lift one more thing for me. That was silly: He is able-bodied, I am not. I had to let go of my pride and remind myself that the people who care about me want to support me.

Ash Fisher is a writer and comedian living with hypermobile Ehlers-Danlos syndrome. She lives in Oakland. Learn more about her on her website. Are you sure you aren't lying, though?

Pain relief looks different for everyone. The cool thing about comfort zones is that when we step outta them, they grow! The brave man is not he who does not feel afraid, but he who conquers that fear. Your soul is calling to you. But to deny that call from your soul is to deny yourself the life that you deserve to live. Take This Action: Science is suggesting that instead of focusing on your weaknesses, cultivate the crap outta your strengths.

This is what will make you extraordinary. Wanna learn your top strengths and how to apply them? Do the worksheet in my free Purpose Pack. Rather, I believe that the highest success in living and the deepest emotional satisfaction comes from building and using your signature strengths. Realize This: As a baby, we need love. So from a young age we create images of ourselves, pretending to be what we think other people want us to be. Today is a gift. That's why we call it 'The Present'. Howard Polley Life, I still can't believe how amazing it is, no matter how much you know, you will never know everything at once, and there lies the beauty of life.


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  6. You can't control everything, but who would want too? Trying to control everything would be to much work and not enough life. Like being every where and no where at once. It seems the more you examine life, the more logic you see. And the same method can be applied to the other senses. Hear the music of voices, the song of a bird, the mighty strains of an orchestra, as if you would be stricken deaf tomorrow. Touch each object as if tomorrow your tactile sense would fail.

    Smell the perfume of flowers, taste with relish each morsel, as if tomorrow you could never smell and taste again. But of all the senses, I am sure that sight is the most delightful.

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    Don't ever mistake my silence for ignorance, my calmness for expectance, and my kindness for weakness. Remember, don't allow other people to control your thinking, and don't allow outside forces to intrude on your wellbeing.

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    Remember that you have abilities, and remember that you also have a brain, which means that you have controls, so don't stress yourself. It's healthier to logically think about things then it is to just worry about things. You'll figure it out. And when you're tired, Rest. Learn to relax every part of your body, especially the face and the stomach area. It's your life, enjoy the fucking shit out of it.

    We too go forward, but we can also go left, right, up, down, and back. We are particles, but we all ride the wave. Be careful of your thoughts, negative thoughts are unhealthy for you, choose your thoughts well. Be careful what you say, negative words are unhealthy for others, choose your words well. We must understand the differences between what is logical, and, what is illogical. In order to know what logical is, you must also know what illogical is.

    Lacking orderly continuity or union. Now lets take the ill out of 'ill'ogical. Resulting in suffering or adversity. Indicating hostility or enmity. Unfavorably or with disapproval. With difficulty or inconvenience; scarcely or hardly. An often persistent bodily disorder or disease; a cause for complaining. To go deeper into what being ill is, read about know thyself and mental health. Logical is being capable of or reflecting the capability for correct and valid reasoning.

    Knowledge Base

    Based on known statements or events or conditions. Marked by an orderly, logical, and aesthetically consistent relation of parts. Capable of thinking and expressing yourself in a clear and consistent manner. The opposite of ill is well. Well is being in a good or proper or satisfactory manner or to a high standard. To a suitable or appropriate extent or degree. Favorably; with approval. Discretion in practical affairs. Wise or advantageous and Worthy of being recommended or suggested.

    Knowing how to avoid embarrassment or unusual distress. With prudence or propriety. Indicating high probability; in all likelihood.

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    Using correct or appropriate behavior, with good humor, without resentment. With great or especially intimate knowledge. An abundant source. To a great extent or degree. Thoroughly or completely; fully; often used as a combining form. To go deeper into what being well is, read about Morals and Ethics. Everything Happens for a Reason Things do happen for a reason, but not the reasons you're thinking of or know of.

    Everything happens for a reason because everything is cause and effect.

    2. I got into a consistent routine

    But the problem with everything being cause and effect is that you can't be aware of everything , and the things that you are aware of, you will not always fully understand. So saying that everything happens for a reason, is an extremely idiotic idiom. Of course a lot of things have to happen for a reason , if not, then we would not be here.

    This is what we know.